So…yeah…same old same old. I never know whether to keep mostly silent about health stuff – partly because sometimes talking about it is depressing, partly because I assume folks get sick of hearing how I’m still sick. (Yep I know the clue’s in the word ’incurable’ but a lot of people don’t know how to react beyond “what? You mean you’re still sick?”)
There’re also the peeps who think talking about your illness – ’going on about it’ – after a certain amount of time isn’t healthy.
Invisible illnesses are hard to understand.
Syndromes seem even more so.
I’m still learning how to stay sane like this…and I’d possibly feel a whole lot better if others had more of an understanding about what living with a disabling, invisible disease is like. Especially the one I’m learning to cope with.
Because as folks keep telling me – I look fine.(Apparently. Tho’ I realised yesterday that I have no vanity left. But that’s another story…)
There are a lot of us struggling with this kind of life and I think it would be easier if we talked about this kind of stuff a bit more. Especially the mental health aspects.
So…yeah… I’m still sick, and if I don’t post/comment/reply to comments/email/retweet etc odds are it’s because I’m even more ill than usual.
The current flare is perhaps due to a combo of stressors – one after the other since October.
And the fact that I still suck at pacing.
Stress + energy overdraft = a frustrated, resentful, exhausted, and sad, Sand.
I had high hopes for the gluten free diet, but I’m too ill to prepare much food so I’m not eating enough, which isn’t helping me get stronger. It’s a vicious circle.
So…yeah…I’m still figuring out the right balance of how much to explain/acknowledge and how much to leave unsaid/let go of. I may never figure it out…but I’m hoping the combo of writing about it and art will help me to find that balance.
Big thanks to anyone reading 🙂
…but maybe there should be? Anyone have any ideas how I can get better at it?*
If you’re not from the USA some of this show may be a bit of a culture shock, but the content is helpful. Easy to understand language and a lot of good info in a condensed form.
And yeah – I think Brené Brown talks a lot of sense. (I’ve started a pinboard – any suggestions gratefully received.)
*not a rhetorical question. I really do need all the advice I can get…
OT – really looking forward to this 🙂